Wednesday, May 13, 2015

Jacob's First Birthday!

We made it! We made it to Jacob's first birthday! Since he has been born we have been told that Jacob may only make it months to years. To be able to celebrate his first birthday with him is such a blessing within itself. This year has been challenging, heartbreaking, and draining, yet in many ways rewarding. We are happy that we are able to have Jacob with us today as we know things to this point could have been so much different. I feel as if every day we get wrapped up in appointments, therapies, visits, and our daily routines that I needed to take some time to truly reflect upon this year. Instead of recapping Jacob's first year I decided to take a different approach, so here it goes.


Over the past year, I HAVE LEARNED...

That a special needs child is a child first.

There are a lot of babies who are facing life-threatening disorders and many who may never come home.

A simple smile can be a huge developmental milestone and has so much meaning behind it.

Neurology is like meteorology, it is all a guessing game.

Hospital couches are pretty similar to dirt grounds.

How backwards the government really is when it comes to providing assistance.

To become our children's biggest advocate because we are the only voice they have.

Everyone has an opinion and it is okay if it is not the same as yours.

To stop turning to the internet for answers.

Not to get aggravated with other peoples' ignorance.

That strong people do not get handed difficult situations - anyone can become strong when it is the only option you have.

That those who you thought would be there for you during your time of need may become more distant,

And those you may not have expected to be there for you during that same time may actually be some of your biggest supporters.

It does not make you weak to ask for help but it takes some getting use to.

Laughter can sometimes be the best answer to your problems.

It is okay to cry, and then to cry, and then to cry some more.

That life may not go the way we envisioned it but don't dwell on that.

To take it day-by-day instead of focusing on the big picture, as the big picture can be too overwhelming.

There are a lot of things we cannot control, but I am slowly learning to be okay with that.

Family is the most important thing and can get you through tough situations.

No matter how old we are we will still need our parents, and they will always be there for us.

Stressful situations do not have to tear marriages apart, rather it can make them even stronger.

Siblings can adjust to any situation and have unconditional love for others.

Jacob will teach me more than I will ever be able teach him.


We love you Jacob and hope to celebrate many more birthdays together!