He can read!! Okay, okay, not really... But Jacob sure could have fooled us. It seems as if after posting about sleep being overrated, he decided to be a good little baby and start sleeping more (except for last night). It was as if he read the blog and said "hmmm, maybe I'll cut my parents some slack." Or he is a fan of reverse psychology?!? Whatever it is, we will take it! After Jacob's hospital stay we decided to convert him finally to his crib. Due to his spasticity, laying on a harder flat surface is not comfortable for him. I found a baby memory foam pad for the crib and that did just the trick. Since we put him in his crib he is sleeping from 10:00 to 4:00-5:30. After we feed him he than sleeps to 8:00 most days. It is definitely a breath of fresh air to get him moved out of our room and sleeping a little more. Now if only I can re-wire myself to sleep straight through until 4 or 5:00.
Besides that, we did have an update with the neurologist last week. He still feels that seizures are due to arise any day for Jacob. Although I know it is most likely inevitable, it is still so hard to believe we will be facing multiple seizures daily with our little man. The neurologist also noted no appreciable change in development with Jacob, which always hurts to hear. Unfortunately it is the truth though. He decided to up his med dosages because his spasticity was getting pretty bad again. This could be a reason too I am sure why he might be sleeping better because his body can relax a little better. We do not go back to the neurologist until March now.
One last update is our aquatic therapy. Unfortunately Jacob's therapist decided to leave the practice due to 2 other jobs she already has. Jacob was starting to do pretty well with her and enjoyed his weekly pool time. We were just informed that the new therapist they brought in does not have experience with young pediatrics... GREAT! They are looking to possibly bring someone in on a contracting basis to work with Jacob and another little boy there. This is not a guaranteed agreement yet. If this does not work out then we are back to Akron and back to rushing around with long, drawn out days of appointments. I really hope we can stay close to home because life has been so much more calm and less stressful not running out to Akron every week. The downside of all of this is by the time we figure out what is going to happen, Jacob will be out of therapy for 3 weeks. That is never a good thing.
That's all I have for now...
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